For Those Who Have Asked

Sorry I’ve been a little behind.  It’s been a while since I updated you all on Ayub.  The last you heard, we had scheduled surgery and were planning to start ADHD meds.  So, here’s what’s happened:

surgery

The week of Thanksgiving, Ayub had his tonsils and adenoids out.  I have to say, this was a much tougher process than I expected.  It took a good eight days before he was feeling well again.  Poor thing was pitiful.  For a kid who never complains about pain, he had a tough time.  Once healed, we did begin to see a minor difference in his behavior, mainly that he could sit through dinner more calmly.  However, it wasn’t a big enough difference to stop there.

Despite the massive ice storm that left us without power the week of Christmas, we headed off to the pediatrician to get some ADHD medication.  We started it over Christmas break and saw an immediate difference.  Although he was still hyped up about the holidays and Santa and new toys, he was manageable.  We sent him back to school expecting rave reviews from his teacher.  Results were not as great as we had hoped.  She saw a slight difference, but not enough to help him academically.  He still struggled with behavior and was still disrupting the classroom.  So, after a month, we raised the dosage of medication.  TA-DA!! Suddenly the fidgeting lessoned, he was able to concentrate and he started bringing home completed work from school.  His teacher was thrilled.  One day he brought home a very complicated drawing of a dragon for Chinese New Year.  He spent a total of four hours over the weekend coloring it in.  Every.  Single.  Detail.  It was amazing.  He has never liked to draw or color, yet the time he devoted to this was massive.  I was floored.

I will say that as much as we are enjoying the calm, there are some down sides to the medication.  He really isn’t the same kid he was before.  He’s still funny and a bit of a clown, but lately he has seemed more sad.  There are days when he just looks unhappy.  We’ve also seen a huge shift in his emotions.  Prior to his tonsillectomy, we had seen him cry four times.  That’s right, in almost two years, he had cried only four times.  Now there are some days when he cries four times in one day.  That may be an exaggeration, but he is definitely much more emotional.  I’m not writing this off as a bad thing.  It is tiring and can really slow things down when you have to stop and deal with the waterworks, but it is showing us some of the things that upset him.  Before, he must have been just closing off those emotions.  Now we get to see them, which is interesting.

ayub watermarked-2

Somewhere in the middle of all this, his teacher asked whether we’d ever ruled out Sensory Processing Disorder.  I have to be honest, I had heard about this from a lot of other adoptive parents, and I thought it was just kids who don’t like tags in their clothes to rub or have to have a certain kind of bath towel.  I had no idea how encompassing it could be.  I went online and found the Sensory Processing Disorder Foundation, which had some online checklists.  My jaw hit the floor when I realized that we were dealing with a sensory seeking kid.  We made an appointment with an Occupational Therapist who specialized in SPD (whew…lucky to have that handy) and she confirmed my online diagnosis.  He does have sensory seeking SPD, but she says it is secondary to ADHD in his case.  So, we will continue with the ADHD meds and have an OT visit every week.  I will say that just receiving this diagnosis makes it much easier for me to deal with his behaviors.  Now when he climbs all over me, I understand why and try to find appropriate ways to give him touch.  When he hums or makes nonsense noises, I try to find music or something else to give him an audio input.  It suddenly makes so much more sense.

Bottom line – he is doing much better at school and we are all doing much better at home.

ayub watermarked-3

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3 responses

  1. Oooh, interesting. Very interesting! My son has sensory issues, and we’re currently working with an OT who has not given a specific diagnosis. But I’m another mom who had a totally different idea about what SPD was like – tags, socks, stuff like that. Constant motion and constant talking is what it is like for my son. So please, I’d love to hear more about providing audio input for the constant talking. And sensory seeking? Eeeek, mine has stabbed himself in the face with a fork repeatedly, thankfully not breaking the skin, but eeeeeek!

  2. Thanks for continuing to share about this. It sounds like you’ve made some great steps forward. I wonder if the fact that you’re seeing more emotion (on the sad end) is a good thing – that he’s able to feel and process some things. That sort of shocked me that you had only seen him cry 4 times in two years – I mean, he’s honestly had a lot to cry about in the grand scheme of the world during that time! I hope things continue to improve and even out for all of you.

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